STATES CHRONICLE – Parents make a bucket list for their terminally ill baby in order to make sure that she makes the most out of her short life. The touching gesture comes as the parents’ reaction to the diagnosis that their daughter received. Zailynn Mars was diagnosed with a genetic degenerative disease called spinal muscular atrophy, which affects motor skills and damages the muscles.
Zailynn was only given two years to live after being diagnosed and the disease has already affected some of her motor functions. According to her parents, she used to be able to hold her head up by herself for a couple of seconds but she can no longer do that. She also requires special breathing treatments regularly and needs to lay on her back 95 percent of the time in order for her airways to remain clear.
But after hearing the diagnosis, Zailynn’s parents decided that they were going to help their daughter make the most out of the two years she was given to live and created a bucket list of things they thought it was important to help her do before the disease claims her from them.
Cory Mars, Zailynn’s father, has talked to media outlets explaining the family’s gesture. He explained that they were not looking for handouts but that they were amazed at the fact that many people decided to donate money in order to help their daughter cross some of the things off her bucket list.
When the couple found out about Zailynn’s limited time Cory, the baby’s father, set up Facebook and gofundme pages to help them with the medical expenses while Katie, the baby’s mother, started working on the list so that they could have as many lovely memories with their daughter as possible in the short time that they had.
More than a third of the items on the list have already been crossed of and completed. The list has 50 things for Zailynn to do, including visiting the Milwaukee County Zoo, taking photographs with firemen and pictures in her mom’s wedding dress as well as trips to Miller Park and Lambeau Field.
The parents have also planned a prom for their daughter. The party will include a raffle, a silent auction, pictures and prizes, as well as a DJ and a photographer. Part of the profits will be donated to other families affected with SMA. The family will keep working on completing the list, at the top of which is Zailynn being walked down the altar by her father.
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